Technology helps patients with serious illnesses

Project: Mobihope – Increase the quality of life and care for patients with life-threatening diseases
Partner: Fundația Hospice Casa Speranței
Beneficiaries: Patients with life-threatening diseases
Location: Bucharest and Brașov
Year of launch: 2014
Budget: 592,188 lei

Purpose of the project:

Increase the quality and accessibility of palliative care services for people with life-threatening diseases.

Problem:

– 4.5 million people, children and adults, are confronted with treating a seriously ill individual (usually a close relative) suffering from an incurable condition in an advanced stage (according to a study conducted by the Hospice Casa Sperantei Foundation).
– 76.5% of the people in this situation have relied or are relying on family support.
– 23.5% of their families are forced to care for the patient on their own.
– Only 1.2% of the families caring for a terminally ill relative are receiving support from a specialized palliation care service.

Solution:

– Digitizing the documentation related to the palliative care services provided in four locations (Brasov, Bucharest, Zărneşti and Făgăraş);
– Extensive telemedicine consultation;
– Implementation of a help-line service (0377 100 078) for the patients of the Hospice Casa Speranţei, operating 16h / day during the week, 24h during weekends;
– Palliative care consultancy for family physicians and trainee physicians, under the national palliative care certifying program;
– Online educational service for children with special educational needs.

Results:

– 127 employees of Hospice Casa Speranţei Foundation (doctors, nurses, social workers, psychologists, kinetotherapists, psychological councillors, receptionists and medical registrars) directly involved in the provision of patient services and in the use of integrated computer system and tablets;
– 25 family doctors and 64 medical doctors enrolled in the national palliative care certification program were trained in providing care services to patients with incurable diseases;
– 599 telemedicine sessions;
– 229,883 interventions using the integrated IT system;
– 15,179 calls to helpline service
– 84 family doctors and specialists all over the country received consultancy on how to provide care services to their own patients (403 patients cared after).
– Electronic files created for 5,166 patients;
– 406 online educational sessions provided to 40 children with special educational needs.